REACT Study (Recruitment until August 31st 2017)
Are you a relative of someone with psychosis or bipolar disorder?
Relatives Education and Coping Toolkit….
· Do you feel DISTRESSED?
· Would you like SUPPORT and information via an online toolkit for relatives?
· Would you like to take part in an ONLINE research study for relatives?
· If the answer to these questions is YES then we’d love to hear from you!
What is REACT? REACT (Relatives Education And Coping Toolkit) is online peer-supported toolkit for relatives of people with psychosis or bipolar disorder. The aim of this study is to test the effectiveness of REACT for reducing relatives’ distress and explore the costs involved in delivering this intervention.
Is this research for you? Participants must be aged 16 years old or over, have access to the internet, and be able to understand written and verbal English. Participants must not be currently taking part in another research study.
Who are we? We are a team of researchers from Lancaster University, Lancashire Care NHS Foundation Trust, Liverpool University and University College London. This project is funded by the National Institute for Health Research Health Technology Assessment (ref 14/49/34).
For more information or to register your interest for this study please visit: www.reacttoolkit.co.uk or contact the REACT Team on firstname.lastname@example.org dfa
Valuing Active Life in Dementia (VALID) Research Study (Recruitment until March 2016 with a view to extension until September 2016)
Do you have dementia or provide support to someone who does?
What is the VALID research study?
Maintaining both everyday and interesting pleasurable activities can be difficult for people with dementia as well as for those who support them. Occupational therapists assist people to continue to participate in activities despite the difficulties that they might be experiencing.
VALID is a research study involving people with dementia, and the people who support them (a supporter could be a family member, friend or neighbour). We are looking at the possible benefits of a programme of occupational therapy for people who have been diagnosed with dementia and those who regularly support them.
Can I take part in the study?
We are looking for people who have been diagnosed with dementia. The person who supports you regularly also needs to take part. You can take part if:
- You live in your own home or sheltered accommodation
- You receive regular assistance from a supporter
(A supporter can be a family member, friend or neighbour)
- Your supporter agrees to take part as well
What would taking part involve?
You would both be asked to provide some information about your health and wellbeing to a researcher, who will visit you at home after you have agreed to take part in the study; and then again, three months and six months after that. Also, at about a year and then again at eighteen months after agreeing to take part in this study, the research team will contact you by telephone to ask some questions about your wellbeing.
If you both choose to take part, you and your supporter will both:
EITHER receive around ten hours of occupational therapy in addition to any care, treatment or services that you usually use.
OR carry on receiving any care, treatment or services that you usually use. If you decide to take part, you will have a 50:50 chance of receiving the occupational therapy or not. We carry out the research like this because we want to compare the experiences of people that receive occupational therapy, with those who do not. If you both receive the occupational therapy, this would involve around ten hours of occupational therapy for between five and ten weeks from the same occupational therapist.
These sessions will be arranged for a day and time that suits you both. This would be in addition to any health services, care or treatment that you usually use.
Alternatively you may not be offered the occupational
therapy programme. If so, you will continue using the health services, care or treatment you usually use.
What do I do if I am interested in taking part or want to find out more information?
If you are interested, you can:
EITHER speak to the person who gave you this leaflet. With your permission, they will pass your name and telephone number to Nicola Walker, Senior Research Practitioner
OR you can fill in the reply slip included with this leaflet and send it to the research team using the Freepost envelope provided.
You will then be telephoned to discuss the research study in more detail. You will also be asked some questions to make sure that being involved in the study is right for you. You can then consider if you are interested in taking part.
If you would like to find out more about the study, please contact:
Nicola Wallker, Senior Research Practitioner, Room 02.01, RILD, Barrack Road, Exeter, EX2 5DW
Telephone: 01392 408 143 or Mob: 07795 665 602 or Email: rde-tr.DDC@nhs.net
Please note: if Nicola Walker is not available when you call, please leave a message. She will return your call as soon as possible.
Co-ordinated Programme to Prevent Arthritis: Can We Identify Arthritis at a Pre- Clinical Stage? (Recruitment until January 2020)
Are you the relative of someone with rheumatoid arthritis?
Some people with rheumatoid arthritis have antibodies in their blood called Anti-Cyclic citrullinated Peptide (CCP) Antibodies.
Professor Paul Emery and his team are interested to find out if family members of patients with rheumatoid arthritis also have these antibodies – this can be found out by doing a simple blood test.
If you are the first degree relative, or have any first degree relatives - this means your mother, father, brothers or sisters, or children (over 16 years) - and would be willing to have a blood test, please speak with your Research Nurse or Study Doctor.
We will then send them an information pack with details about the study and instructions about having the blood test.
Contact details for Participation:
If you are interested in receiving an information pack which gives details of how you can help us with this vital research please get in touch with our research nurse team.
Telephone (0113) 392 4729 or
Morita Therapy Trial - Therapy for Depression and Anxiety: A Feasibility and Pilot Study(Recruitment end date to be confirmed)
This pilot trial has now finished and the results are currently being analysed and written up. Towards the end of the year the researchers will be producing a poster of the results for former trial participants. The researchers have advised that the majority of the participants both found Morita Therapy beneficial and reported it to be an acceptable and valuable approach within qualitative interviews.